The UKMS Nurse Group was established in the Summer of 2018, with the inaugural meeting of the core steering group taking place in September 2018.
The broad purpose of this group is to assist in the national standardisation of nursing care for people living with Myeloma and associated conditions. The aims of the group are:
- To create a UK Myeloma Nurse Forum through the UKMS to allow for sharing of best practice
- To develop Myeloma Nurse Specialist/Research Nurse Educational Days
- Develop nurse led guidelines on supportive care issues in myeloma and associated conditions
- Encourage and develop nurse led research and publication working with Myeloma UK and aligned with UKMS and UK MRA work plans.
Initial areas of focus will be to develop guidance for self administration of Bortezomib. Areas of research the group is looking at developing are real world data on quality of life of patients on clinical trials and what factors influence trial entry. In addition, the nurse group will be working with the newly formed UKMS Pharmacy group on delivering myeloma treatments at home and producing standardised medicine administration charts to support patients with complex myeloma treatments.
The Group will also establish a network of nurses with a specialist interest in myeloma across the UK. This will provide increased opportunity for peer support and encourage sharing of good clinical practice.
The UKMS Nurse Core Steering Group members include:-
Myeloma Nurse Chair
Suzanne Renwick (Myeloma UK)
Agendas, minutes and notifications of future meetings will be available on the UKMS websites.
For any queries please or if interested in joining the network to support the steering group on projects please send your details and areas of interest to Sarah Henshaw (Chair) at email@example.com or Liz Brown (Vice Chair) at Liz.E.Brown@nhslothian.scot.nhs.uk